Determining Of Total Data Elements Required In Multi- Disciplinary Breast Cancer Researches

Publish Year: 1395
نوع سند: مقاله کنفرانسی
زبان: English
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NASTARANCANSER02_032

تاریخ نمایه سازی: 22 دی 1396

Abstract:

Different disciplines in multiple research centers need to collect a large amount of various data,which commonly spends a lot of cost and time. Principled collection of needed data in each field willincrease speed and precision. Having the importance of registries and data quality, in this study,the researchers tried to create a maximum comprehensive dataset for multi-disciplinary breastcancer research field. First, the scientific literature and published studies was systematicallyreviewed and their related data elements were extracted. The results were presented tospecialist’s in different disciplines to have their comments. The next phase was the survey ofsurveys of experts in a three-step Delphi which had an expert panel in the last step. Finally, acombination of scientific experts and scientific literature review was used. In the first step, 194data element in 11 specialized breast cancer-related fields formulation were extracted and sent toexperts. In the first Delphi step the experts added 37 new data elements, 11 elements wereduplicates and not particularly helpful. Finally, the maximum data set was confirmed by membersof the Expert Panel with 220 independent data elements in 11 specialized multidisciplinary fields inbreast cancer. The results consensused with Delphi method and Expert Panel, was more useful forthe breast cancer research center because there were collected for their professionality andusefulness. Using the results of this study will help to increase efficiency in similar breast cancerresearch centers.

Authors

Mohsen Goli

Cancer Informatics Department, Breast Cancer Research Center, ACECR, Tehran, Iran

Alireza Atashi

Cancer Informatics Department, Breast Cancer Research Center, ACECR, Tehran, Iran

Najmeh Nazeri

Cancer Informatics Department, Breast Cancer Research Center, ACECR, Tehran, Iran

Sara Dorri

Cancer Informatics Department, Breast Cancer Research Center, ACECR, Tehran, Iran