Information Registry System on Congenital Hypothyroidism: A Systematic Review

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نوع سند: مقاله ژورنالی
زبان: English
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JR_JPRE-9-3_002

تاریخ نمایه سازی: 9 آذر 1402

Abstract:

Background: Congenital hypothyroidism is the most common congenital disorder of the endocrine system, leading to preventable mental retardation.  Objectives: We aimed to evaluate the current status of congenital hypothyroidism information registry systems. Methods: In this systematic review ۲۹۰ papers identified. A total of ۲۵۴ articles were screened, of which ۱۷ qualified articles were selected through the databases of Scopus, science direct ProQuest, PubMed, as well as the search engine Google scholar (no restriction on date of publication) up to ۲۰۲۰, were searched. Inclusion criteria were the Articles with the English language that examining information registry systems on congenital hypothyroidism. Articles whose full texts were not accessible, case reports, and letters to the editor had to be excluded.  Results: This study showed that the primary goal of nearly half (۵۰%) of the information registry systems for congenital hypothyroidism is to evaluate the efficiency and effectiveness of the screening program. Other information registry systems for congenital hypothyroidism have examined the epidemiology of the disease in ۴ studies (۲۳.۶%), monitoring iodine deficiency in ۳ studies (۱۸%), surveillance disease in ۱ study (۶%), and describing the clinical and familial features of the patient in ۱ study (۶%). Conclusions: Few studies have been done on developing information registry systems, and most studies have focused on the use of information systems in this field. Further comprehensive reviews are recommended to investigate the infrastructure of the commission national registry and world network to record information units on congenital hypothyroidism.

Authors

Morteza Ghasempour

Department of Health Information Management, Tehran University of Medical Sciences, Tehran, Iran.

Hamideh Ehtesham

Department of Health Information Technology, Birjand University of Medical Sciences, Birjand, Iran.

Noushin Rostampour

Department of Pediatrics, Imam Hossein Children's Pediatric Center, Isfahan University of Medical Sciences, Isfahan, Iran.

Shahram Tahmasbian

Department of Biotechnology, Shahrekord University of Medical Sciences, Shahrekord, Iran.

Leila Shahmoradi

Department of Information Management and Health Informatics, Tehran University of Medical Sciences, Tehran, Iran.

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  • Wassner AJ, Brown RSJCOiE, Diabetes, Obesity. Congenital hypothyroidism: recent advances. ...
  • Van Vliet GJTl. Treatment of congenital hypothyroidism. ۲۰۰۱;۹۲۷۶(۳۵۸):۸۶-۷ ...
  • Howson C, Cedergren B, Giugliani R, Huhtinen P, Padilla C, ...
  • Tariq B, Ahmed A, Habib A, Turab A, Ali N, ...
  • Rastogi MV, LaFranchi SHJOjord. Congenital hypothyroidism. ۲۰۱۰;۵(۱):۱۷ ...
  • Chen C-Y, Lee K-T, Lee CT-C, Lai W-T, Huang Y-BJJoe. ...
  • Rose SR, Brown RS, Pediatrics AAo, Association AT. Update of ...
  • Gliklich RE, Dreyer NA, Leavy MB. Registries for evaluating patient ...
  • Rustagi N, Singh R. Electronic medical record: Time to migrate? ...
  • LaBresh KA, Gliklich R, Liljestrand J, Peto R, Ellrodt AGJTJCJoQ, ...
  • Workman TA. Engaging patients in information sharing and data collection: ...
  • Liu FX, Rutherford P, Smoyer-Tomic K, Prichard S, Laplante S. ...
  • Hoque DME, Kumari V, Hoque M, Ruseckaite R, Romero L, ...
  • Olivieri A. The Italian National Register of infants with congenital ...
  • Olivieri AJIjop. The Italian National Register of infants with congenital ...
  • Shahmoradi L, Ehtesham H, Mehraeen E, Rostampour N, Tahmasbian S, ...
  • Ray M, Muir T, Murray G, Kennedy R, Girdwood R, ...
  • Nanu M, Ardeleanu I, Brezan F, Nanu I, Apostol A, ...
  • Knowles RL, Oerton J, Cheetham T, Butler G, Cavanagh C, ...
  • Taheri B, Haddadpoor A, Mirkhalafzadeh M, Mazroei F, Aghdak P, ...
  • Dawrant JM, Pacaud D, Wade A, Archer S, Bamforth FJJCjoph. ...
  • Hettiarachchi M, Amarasena SJBhsr. Indicators of newborn screening for congenital ...
  • Kurinczuk J, Bower C, Lewis B, Byrne GJJop, health c. ...
  • Roberts HE, Moore CA, Fernhoff PM, Brown AL, Khoury MJJAjomg. ...
  • Alenazi SA, Abdalla SH, Mohamed HT, Balla AA, Abukanna AMJIp. ...
  • Cameo T, Gumer LB, Williams KM, Gomez J, McMahon DJ, ...
  • Ellerbroek V, Bonfig W, Dörr H-G, Bettendorf M, Hauffa B, ...
  • Cranston MM, Ryan MA, Smith TC, Sevick CJ, Brodine SKJBed. ...
  • Castanet M, Polak M, Bonaïti-Pellié C, Lyonnet S, Czernichow P, ...
  • Ray M, Muir T, Murray G, Kennedy R, Girdwood R, ...
  • Çaylan N, Tezel B, Özbaş S, Şahin N, Aydın Ş, ...
  • Charoensiriwatana W, Srijantr P, Janejai N, Hasan SJSAJoTM, Health P. ...
  • Morteza Ghasempour LS, Hamideh Ehtesham,Esmaeil Mehraeen,Nooshin Rostampour,Shahram Tahmasbian,. Instructional Design, ...
  • Maione L, Chanson P. National acromegaly registries. Best practice & ...
  • Kane RL, Chung KC. Establishing a National Registry for Hand ...
  • Noori T, Ghazisaeedi M, Aliabad GM, Mehdipour Y, Mehraeen E, ...
  • Büyükgebiz A. Newborn screening for congenital hypothyroidism. J Clin Res ...
  • Rovet JFJT. Congenital hypothyroidism: long-term outcome. ۱۹۹۹;۹(۷):۷۴۱-۸ ...
  • Krysinska K, Sachdev PS, Breitner J, Kivipelto M, Kukull W, ...
  • Dolk H. EUROCAT: ۲۵ years of European surveillance of congenital ...
  • Dastgiri S, Kalankesh L, Heidarzadehe M, Tajahmade A, Rezaiane E. ...
  • Charoensiriwatana W, Srijantr P, Janejai N, Hasan S. Application of ...
  • Çaylan N, Tezel B, Özbaş S, Şahin N, Aydın Ş, ...
  • Cranston MM, Ryan MA, Smith TC, Sevick CJ, Brodine SK. ...
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