Maryam saberivand - Connective Tissue Diseases Research Center, Tabriz University of Medical Sciences, Tabriz, Iran
Aida Malek Mahdavi - Tuberculosis and Lung Disease Research Center, Tabriz University of Medical Sciences, Tabriz, Iran.
Sousan Kolahi - Connective Tissue Diseases Research Center, Tabriz University of Medical Sciences, Tabriz, Iran.
Peyman Rezaei Hachesu - Department of Health Information Technology , Tabriz University of Medical Sciences, Tabriz, Iran
Rojin Farzaneh - Connective Tissue Diseases Research Center, Tabriz University of Medical Sciences, Tabriz, Iran
Arezou Ghassembaglou - Connective Tissue Diseases Research Center, Tabriz University of Medical Sciences, Tabriz, Iran.
Mehdi Jafarpour - Connective Tissue Diseases Research Center, Tabriz University of Medical Sciences, Tabriz, Iran.
Dara Rahmanpour - Connective Tissue Diseases Research Center, Tabriz University of Medical Sciences, Tabriz, Iran.
Raha Khabbazi - Connective Tissue Diseases Research Center, Tabriz University of Medical Sciences, Tabriz, Iran.
Alireza khabbazi - Connective Tissue Diseases Research Center, Tabriz University of Medical Sciences, Tabriz, Iran

This manuscript describes the establishment and initial results of a patient-driven registry in Tabriz, Iran to collect demographic, clinical, and paraclinical data, treatment and outcomes of patients with vasculitis. The Tabriz University of Medical Sciences Vasculitis Registry (TUOMS-VR), a patient-driven, prospective and web-based disease registry system, is conducted at the Connective Tissue Diseases Research Center, TUOMS located in Tabriz, Iran. The primary objective of this registry is to comprehensively document prospective data of patients diagnosed with systemic or single-organ vasculitis according to the Chapel Hill Consensus Conference nomenclature and definitions. To date, the registry has successfully enrolled ۷۴۳ patients. The gender distribution within this existing cohort is balanced, with ۵۰.۵% male and ۴۹.۵% female participants. The most frequently diagnosed condition was Behcet’s disease, representing ۵۶.۵% of cases. Polymyalgia rheumatica also emerged as a notable diagnosis, accounting for ۱۳.۷% of cases. By providing a comprehensive and prospective documentation of vasculitis cases, the TUOMS-VR aims to enhance vasculitis patients care and outcomes.

Keywords: vasculitis, Registry, outcome, treatment, Damage, remission