Development and organization of Tabriz University of Medical Sciences Vasculitis Registry: TUOMS-VR

This manuscript describes the establishment and initial results of a patient-driven registry in Tabriz, Iran to collect demographic, clinical, and paraclinical data, treatment and outcomes of patients with vasculitis. The Tabriz University of Medical Sciences Vasculitis Registry (TUOMS-VR), a patient-driven, prospective and web-based disease registry system, is conducted at the Connective Tissue Diseases Research Center, TUOMS located in Tabriz, Iran. The primary objective of this registry is to comprehensively document prospective data of patients diagnosed with systemic or single-organ vasculitis according to the Chapel Hill Consensus Conference nomenclature and definitions. To date, the registry has successfully enrolled ۷۴۳ patients. The gender distribution within this existing cohort is balanced, with ۵۰.۵% male and ۴۹.۵% female participants. The most frequently diagnosed condition was Behcet’s disease, representing ۵۶.۵% of cases. Polymyalgia rheumatica also emerged as a notable diagnosis, accounting for ۱۳.۷% of cases. By providing a comprehensive and prospective documentation of vasculitis cases, the TUOMS-VR aims to enhance vasculitis patients care and outcomes.

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Keywords: vasculitis , Registry , outcome , treatment , Damage , remission